Hello Friends,
“525,000 minutes so dear,” are words from my favorite “Rent” song.
How DO you measure time? Every 90 minutes someone is diagnosed with ALS, while every 90 minutes, someone else loses their battle with the disease. Yet, ALS is still considered a rare disease. There is no cure.
No one has ever survived the dreadful disease…yet.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that attacks motor neurons in the brain and spinal cord. This results in the wasting away of muscle, loss of movement and eventual paralysis. Normal life span is between 2-5 years.
I was diagnosed with PLS, an even rarer condition on the motor-neuron spectrum. I share many of the same symptoms and limitations my PALS (patients with ALS), but I have been blessed that PLS is not life threatening. Although I have lost my ability to walk and speak, my hope is to shine a light on ALS by raising awareness to conquer this life altering, life ending disease.
Please join me at als.org
Remember yesterday,
Hope for tomorrow,
Life fully for today.
Sue Driscoll